Touring Ideas for Individuals with Von Willebrand Illness (VWD)
Individuals with the bleeding dysfunction von Willebrand Illness (VWD) can journey wherever they please. Nonetheless, a number of easy ideas could make touring much more stress-free.
Earlier than your journey, discover out from the Hemophilia/Bleeding Dysfunction Complete Care Program (Hemophilia Remedy Middle) the names, addresses and telephone numbers of remedy facilities alongside the route. You must also take alongside up-to-date written medical data, together with:
- the precise VWD prognosis
- the precise prescription for desmopressin or issue concentrates, or different medicine
- a letter out of your doctor/remedy middle offering a quick clarification of your circumstances and the necessity for this medicine
- the title and telephone variety of the remedy middle the place you’re recognized.
These papers may additionally show helpful when passing by means of airport safety or at border crossings if customs officers grow to be suspicious of the medication, needles and syringes you’re carrying. Be sure your or your member of the family’s Medic Alert bracelet is updated. When you, or your member of the family, self-infuse desmopressin or issue concentrates, be sure you have greater than sufficient for the entire journey. Verify that you’ve all of the provides (needles, syringes…) you want.
If you don’t self-infuse, speak to the nurse coordinator at your Hemophilia Remedy Middle about the potential of carrying alongside a provide of desmopressin or issue focus. These merchandise are usually not obtainable in every single place.
If you don’t want to hold these merchandise with you, discover out earlier than you allow the place they’re obtainable.
Be sure you have a cooler to maintain the merchandise on the proper temperature.
You must also discover out in case your insurance coverage protection applies within the province or nation you’re visiting. If not, take out particular journey insurance coverage.
By planning forward to your journey, you may efficiently navigate these frequent journey points.
CSL Behring want to acknowledge the Canadian Hemophilia Society for granting permission to adapt parts of their booklet, “All About von Willebrand Illness,” in growing this text. The whole booklet is offered for obtain at www.hemophilia.ca/en/educational-material/printed-documents
About David Web page
David Web page is the manager director of the Canadian Hemophilia Society (CHS). He has written quite a few publications offered by the CHS.
This text was offered by Humate-P® (Antihemophilic Issue/von Willebrand Issue Complicated [Human]), CSL Behring’s issue substitute remedy for the remedy of hemophilia A and von Willebrand disease (VWD). Humate-P® is an element substitute remedy with over 20 years of demonstrated security and efficacy. For extra data, please go to www.Humate-P.com.
Vital Security Data
Antihemophilic Issue/von Willebrand Issue Complicated (Human), Dried, Pasteurized, Humate-P® is indicated in grownup sufferers for remedy and prevention of bleeding in hemophilia A (classical hemophilia). Humate-P® can be indicated in grownup and pediatric sufferers with von Willebrand illness (VWD) for (1) remedy of spontaneous and trauma-induced bleeding episodes, and (2) prevention of extreme bleeding throughout and after surgical procedure. This is applicable to sufferers with extreme VWD, and sufferers with gentle and reasonable VWD for whom use of desmopressin is understood or suspected to be insufficient.
Humate-P® is contraindicated in people with a historical past of anaphylactic or extreme systemic response to antihemophilic issue or von Willebrand issue preparations or to any of its elements.
Thromboembolic occasions have been reported in VWD sufferers receiving coagulation issue substitute, particularly within the setting of recognized danger components for thrombosis. Warning must be exercised and antithrombotic measures thought-about.
Humate-P® is derived from human plasma. As with all plasma-derived merchandise, the chance of transmission of infectious brokers, together with viruses and, theoretically, the Creutzfeldt-Jakob illness (CJD) agent, can’t be utterly eradicated.
Though few hostile reactions have been reported the most typical are allergic-anaphylactic reactions, together with urticaria, chest tightness, rash, pruritus, edema, shock, chills and fever, and hypervolemia. For sufferers present process surgical procedure, the most typical hostile reactions are postoperative wound or injection-site bleeding.
Please see the complete prescribing data for Humate-P®: http://www.humate-p.com/pdf/HumateP_PI.pdf.